“As a Data Architect, Sabrina is available to support DGHI in achieving their data sharing goals. She takes a holistic approach to identifying areas where the team needs data support. Considering at each stage of the project lifecycle how system design and data architecture will influence how data can be shared. This may entail drafting informed consent documents, developing strategies for de-identification, curating and managing data, or discovering solutions for data storage and publishing. For instance, in collaboration with CDVS Research Data Management Consultants, Sabrina has helped AMANI create a Dataverse to enable sharing restricted access health data for international junior researchers. Data from one of DGHI’s studies are also available in the Duke Research Data Repository….
Reproducibility is another reason that sharing and publishing data is important to Sabrina. DGHI wants to increase data availability in accordance with FAIR principles so other researchers can independently verify, reproduce, and iterate on their work. This supports peers and contributes to the advancement of the field. Publishing data in an open repository can also increase their reach and impact. DGHI is also currently examining how to incorporate the CARE principles and other frameworks for ethical data sharing within their international collaborations….”